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Discussion: My Daughter

Posted Discussion
Aug. 5, 2012
Capt Kirk
408 posts
My Daughter
Life isn't always a game of softball, sometimes life challenges seem overwhelming: My Daughter, Jacki, had a good day after receiving an immunoglobin treatment. Her plasmaferase treatments leave her exhausted and temporarily anemic, so the IVIG treatments relieve the fatigue and breathing difficulties. She forces herself to sit...up in a chair for several hours a day so to keep her ab muscles strong and increase her respiration. In a nutshell, her mobilization has improved.
Her pneumology team has requested that she be placed on the emergency priority list for a lung transplant. Normally one has to be intubated to do it, but the docs said 'there are ways around this.' The team's logic is that she is young (36 yrs), has a better chance of survival than most on the list (50 yrs +) and that she is wasting her young life being 100% incapacitated. The biggest criteria is chance of survival and that is why gaining weight and muscle strengthening are vital.
I believe if the transplant network approves the request this will give Jackie the mental boost to continue with getting stronger and stronger. These lungs might come sooner and she needs to be ready for them.
Capt
Aug. 5, 2012
Duke
Men's 60
720 posts
Capt,

I wish you, your family, and Jacki all the best with these issues. I am sure that I speak for everyone in the softball community, that we will have Jacki in our daily prayers. Thank you for sharing and God Bless!! Please keep us all updated on her progress.

Andy

Aug. 5, 2012
LP
294 posts
Keep the faith capt. all of us here in south Texas are praying for her.
Aug. 5, 2012
J R
182 posts
Keep your chin up and believe in your faith .Myra and Jack
Aug. 5, 2012
Tri18
627 posts
Capt,
We are praying. Is there anything else we can do for you?
Alan
Team 1 Sports
Aug. 5, 2012
swing for the fences
Men's 50
1004 posts
Capt Kirk, best wishes to your Daughters speedy recovery... I couldn't even imagine what this feels like for you. I have a 12 year old daughter..
Aug. 5, 2012
miken44
78 posts
to all softball players tonight or today all of us should say a prayer that this young lady will receive what she needs also remember to ask the good lord to also give strenght to the family
Aug. 5, 2012
southpaw
Men's 60
733 posts
Psalms: "I cried unto the Lord, and He heard my prayer"...O Lord, you are the Creator of life and its sustainer. You bring our first breath and watch over us until our last. Lord, I do not know this dear family; but, I know that you do! You are acutely aware of all of Jacki's needs and I join with others all over our country seeking your will, your blessing, and your healing. Please give her strength for the moment, hope for the future, and assurance that she can trust you. Thank you, Lord. Amen
Aug. 6, 2012
Al33
Men's 55
183 posts
Capt. Kirk, May the lord see your daughter through to a speedy recovery. The game of life is much bigger and more important than the game of softball. Wishing her a big win in the game of life.

Al D. #33
Aug. 6, 2012
CV3
77 posts
Capt. We will keep you and your family in our prayers, Brother!! We know that you are her strength at this time and that family is why we become stronger. So from our Softball community here in Austin, May God be with you at this time.
# 5
Aug. 6, 2012
Fabe
Men's 50
220 posts
Times such as these make us bitter or better, praying that you and your love ones find strength in the Lord Jesus Christ! May your daughter be bless with healing, comfort and being in God's perfect will. Prayers from the Tropics headed to you and yours!! Aloha, Fabe
Aug. 7, 2012
#6
Men's 60
1183 posts
Capt. prayers heading you way, hang in there buddy !
Aug. 7, 2012
curveball
Men's 65
400 posts
Capt., praying God gives you and your daughter the strength to get through this most difficult time. Wishing your daughter a very speedy recovery. Prayers from my 4 daughters and me.
Aug. 7, 2012
Mario
Men's 50
381 posts
Lord we pray for the transplant network to approve this request in Jesus name. I pray that everything involved in this situation would turn out for the good of Jacki. We pray for the family as well, that they would have your peace through all this and that you will get the glory when all is said and done Amen!!!!!
Aug. 12, 2012
Capt Kirk
408 posts
Thanks everyone for your prayers and kind words. My daughter is doing better she has been released from ICU and is at Rehab center getting stronger so that she can be ready for a new set of lungs:
Iím Jacki and I am 36 years old. A bit over 4 years ago I had a double lung transplant at the University of California, San Francisco, due to idiopathic pulmonary arterial hypertension. In early 2012, I was diagnosed with acute rejection and donor-specific rejection with HLA antibodies. The resulting bronchiolitis obliterans is the real mechanical problem after all the damage from the HLA antibodies.

From late February 2012 to May 2012, I went from dancing 3 times a week, going out, traveling and enjoying life to being basically homebound on supplemental oxygen 24/7. This is a real test for someone who detests routine and a monotone life! My sweet boyfriend Giraffe went out and bought me a Playstation 3 so I could escape a little bit. Little did he know I would soon be humiliating him in Tekken 6.

It is very hard to get through every day, but I feel supported and loved by my family, friends and my boyfriend and his super-supportive family. Also, thank goodness for dreams and imaginationÖ.I have to live with those two things a lot more now that I donít have my body.

Now I am living in Lausanne, Switzerland with Giraffe waiting for my 2nd transplant at CHUV. This blog is to pass the time (I have nothing but time!) and perhaps other people waiting for transplants will find my blog and can relate and share.

Jacki
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